Carers often give significant support to the person they support. This can sometimes lead to the carer needing support themselves.

If after an assessment, you are found to be eligible for services, what is put in place could be anything that could help you to care for an autistic child or adult or to have a break. It may take the form of:

• physical help - such as assistance in the home, help with gardening, help with laundry
• other forms of support - such as trips/holidays, travel assistance, training, or short breaks (see below for more information about short breaks).
• a direct payment so you can purchase agreed services or items yourself
   

Direct payments

A Direct payment is money given directly to carers instead of services. The aim is to give more choice and control to the person receiving the money and more flexibility. For example, some carers have used their direct payment to purchase driving lessons, pay for gym classes or to pay a friend or relative to look after the person they care for so they can have a break.

Short breaks

Short breaks, sometimes known as respite, allow you to take a break from your caring responsibilities. Many carers of autistic adults and children really value having some time to themselves when they aren’t required to focus on the needs of the person they care for.

The person you care for may spend some time away from the home or you may spend time away, knowing that the person you care for is being looked after. The type of short breaks available vary significantly depending on the age of the person and the level of their needs.

Services could include:

• home-based respite care – eg a sitting service for a few hours a week or a personal assistant to stay overnight
• family-based short-term respite care - this is where a disabled person is linked with a family who they then go to stay with on a regular basis
• centre-based short-term residential care
• after-school activities or youth clubs
• a joint holiday.

Next steps

Our Autism Services Directory has details of  local and national organisations to help autistic people and their families.

Carers Scotland (part of Carers UK) has lots of information and downloadable factsheets for carers, including carers rights, benefits for carers and short breaks.

You can find out more about the support you can get on the Care Information Scotland website.

Carers Trust has a UK wide network to support carers in their homes, as well as specialist services.

Shared Care Scotland has information about short breaks for carers.

Contact a Family has information for families with disabled children.