The National Autistic Society is deeply disappointed that the Government refused to reverse their proposed new regulations for the disability benefit Personal Independence Payment (PIP). This is a vital benefit for many disabled adults, helping them meet the additional costs of living with their disability.

We are particularly concerned that the changes being made today will make it harder for autistic people to receive the ‘mobility’ part of the benefit, if the difficulties they experience with travel are due to high levels of distress. Please read our previous statement on the amended regulations to see how they have been changed.

What happens next?

A number of MPs and members of the House of Lords are concerned about the changes and we are working with them to challenge the Government to think again.

We will continue to oppose the changes, both individually and with our campaign partners in the Disability Benefits Consortium. For example, you may have seen that alongside others, we wrote a letter to Disabilities Minister Penny Mordaunt calling for a reversal of the changes.

To continue our work in this area, we will need evidence of the impact the change is making. So if you or someone you know goes through a PIP assessment in the coming months and doesn’t qualify for the mobility part of the benefit, we would like to hear from you. In particular we would like to know a) what difficulties you experience with travel and planning and following a journey b) how you would have used PIP mobility to help overcome that difficulty. Please email with your experiences.

If you want to know more about getting PIP, following the changes, click here.

If you would like advice about claiming PIP, you can contact our Autism Helpline.

We will also keep updating our website as more information becomes available.