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Real life stories: parents and carers


 

The same yet different
A poem written by Gillian Naysmith, the mother of a child with autism, which tries to reflect what her son experiences but is unable to communicate.

How wonderful it is to see the world through her eyes
Carly loves drawing and carries pencils and paper with her wherever she goes. Her artwork sells widely and has won her several awards. Carly's grandmother, Ruth, tells us about her special talent.

What more can anybody ask for?
Alison, who has ADHD and autism, has made great progress both at home and in school. Here, her parents share Alison's story.

Proud of our daughter's achievements
Kate is 24 and has Asperger syndrome. Her mum, Jane, tells us about Kate's successes in school and at work.

Asperger syndrome is a special gift
Leon is six and has recently been diagnosed with Asperger syndrome. He would like to play football for Manchester United when he is older.

Jayme's story
Jayme, who has recently been diagnosed and loves boats, ships, trains, artwork, housework and cooking, is prospering thanks to the love and support of his family.

Guy's achievements in education
Guy has achieved a fantastic set of GCSE results, helped in part by good support from his mainstream secondary school, and will be going on to study five AS level subjects.

Dancing means everything to James
A year ago James was a beginner dancer. James has since been entering various dance competitions. Today, he has over 70 dancing trophies. Here, his mum, Sheila, tells his story.

How Khovan is doing two years on...
Shireen gives us an update on her son, Khovan. Since posting her last story about Khovan, he has started primary school. Here, Shireen tells us how he has progressed and the challenges he has faced.

Never give up!
My son finally received a statement of special educational needs. I would like to share my happiness and my experience with other parents, to give them strengh to 'never give up' and follow their instincts.

A young girl's struggle
Gemma wasn't diagnosed with autism until she was 14. Even then, the diagnosis didn't mean she got the support she needed. Mum, Deborah, describes what happened.

I can't 'turn the volume down' - living with hyperacusis
Watch Maia's video about hyperacusis, where people hear sounds very loudly and cannot separate out foreground and background noise.

My daughter has Asperger's
We have an eight-year-old daughter with Asperger syndrome who is also coping with other issues. I read a really interesting personal story the other day and realised the importance of sharing experiences.

Searching for my little boy
Julia recounts the changes she suddenly saw in her son when he was just over a year old, and how her son has since benefitted from a formal diagnosis and appropriate support.

Guess we'll have to find another Wednesday group...
Kai recounts events at her sons' toddler group, when Alex (who has autism) decided he wanted to play with a particular train. Alex loves trains and tries hard to remember about 'sharing'.

Mary's audio diary
Mary is keeping an audio diary for the BBC about her decision to send her son, Peter, to a specialist residential school. The diary follows hers and Peter's experiences and you can listen to it online.

Ben's exam success
My son Ben, who has autism, recently achieved great success in his GCSE exams, despite having at one stage been a year behind in his schooling. I'd like to share with you a positive story that show autism needn't be a barrier to success.

Twenty-six years old and doing well
My son has Asperger syndrome. He's 26 years old and doing so well: to all those who are having trouble getting help, keep fighting and don't accept anything but the best for your child.

World Autism Day 2 April 2008: a parent's perspective
A film by John Rowley, with words by Nicky Clark, mother of two daughters with autism spectrum disorders, featuring music by The Frames.

What happens when my son leaves school?
Justine's son has high-functioning autism. He attends an excellent mainstream school and his close friends are terrific, yet as a young adult who is coming up to the age of 16, she worries about what will happen in the future.

Ryan - a father's poem
I wrote this after Ryan got out of the bath on Tuesday. Whenever he gets out of the bath, he gets close and looks into my eyes - it just made me think about things.

'It was simpleness itself'
I am attaching what I think is an amazing story. It is written by my eldest son Joshua (15) who has autism and has always had to be bribed, cajoled and rewarded to the hilt just to get him to try and write a couple of lines.

Crayfish salad for me, please
An anecdote about social communication, people with Asperger syndrome and Pret a Manger salads...

A perfect birthday?
Sally learned an important lesson on her daughter's third birthday. What we want for our children and what they want are two totally different things.

Somewhere over the rainbow...
Jaiden is a boistrous but endearing six year old boy and his eyes are like saucers with a deep chestnut brown glow. These are the features I crave the most from him because, you see, Jaiden doesn't give much eye contact. He is autistic, so his eyes glide like a skater on ice and they only rarely stop to have a glance.

Fighting to get others to believe me
My son is six years old and he got his diagnosis 18 months ago. As he is my first born, one of my hardest battles has been trying to get people to accept that Im not an over-anxious parent - that I havent been seeing a problem that wasn't really there.

My daughter was bullied at school
My daughter, now 10, has Aspergers syndrome, ADD and Dyspraxia and suffered nearly two years of abuse and bullying by staff, pupils and parents at her first school.

Long live the special school
While I appreciate the idea behind the goal of keeping children with learning difficulties in mainstream education as much as possible, I fear this has lead to a policy of keeping them there at all costs.

Documentaries about autism and Asperger syndrome
Articles about recent documentaries on autistic spectrum disorders, made by film-makers in close liaison with The National Autistic Society.

Nigel's story
The parents of baby Nigel knew from an early age that he was different to other children but after years of being unable to get a proper diagnosis of autism, the Eden Foundation in Malta gave them the support that they and their son needed.

How having the right support and being listened to can change lives
I would like to say to anyone who feels they are not listened to that I have been there, keep trying and don't give up. To every professional who listens to a parent like me, thank you, you change peoples lives. Here is Kieron's story.

Newly diagnosed and hurting
My son, who is now five years old, has just been diagnosed with an autism spectrum disorder. After four years of saying that there is something wrong with him I finally have a sort of answer.

Our experience of inclusion in mainstream school
Unfortunately, the first mainstream school our son attended proved to be a constant source of unhappiness to him. We have moved him to another mainstream school and this is also not working too well. Here are some of our experiences.

Tom can fly and paint a rainbow
Tom, aged six is a Buddhist and a poet, but the consultant says he is autistic...

Trust your instincts about your children
Kirstyn Vaughan had a 15-month battle to get a diagnosis for her daughter. She challenged speech and language therapists and the paediatrician along the way,

These days his biggest worry is which university degree to study for!
Since having the correct diagnosis and support our son's biggest worry these days is which university degree to study for!

I discovered that my daughter has Asperger syndrome by pure chance
My name is Lisa, I am a single parent to Melissa and Jordan, my oldest child, Melissa has Asperger syndrome. I would like to take you on a journey of Melissa's life so far.

Khovan's first few years
Shireen is the mother of Khovan, a young child with autism. Here she tells of the first few years of his life the hurdles she and her family faced and the breakthroughs that really made a difference.

Aaron's story about his experiences as a victim of bullying - in his own words
My son Aaron is currently being home schooled following six months of bullying and physical abuse at school. Aaron was asked to write about his experiences by the LEA so that they can include it as evidence towards his case to secure additional funding for his well-being.

My struggle to have my son's educational needs met
My son Jimmy is nine years old and autistic. When he was first diagnosed we were told he would be able to attend a mainstream school. I was over the moon but the school wasn't prepared for him.

Mentoring and support for students with Aperger syndrome
In my job as a trainer specialising in Asperger syndrome, I travel to different schools, colleges and universities and see a variety of support methods being used. Here is information about some of these methods.

Jamie's story
Jamie is an eight-year-old boy on the autism spectrum. He attends a special school and has learning difficulties. He has developed a passion for dance which he is excelling at, despite his disability and not because of it. His mother tells his inspiring story.

Facing up to discrimination from neighbours
A mother from the States talks about the discrimination she faces from her neighbours against her son who is nine and has autism.

Autism and the animal world
Tom is 19 years old and has autism. He loves some animals - notably giraffes - but is terrified of others, especially dogs. Tom's parents describe his love-hate relationship with the animal kingdom.

Double trouble
Angela's lovely story about her twins, one of whom has autism.

Lucas and the ra-ra skirt
I am the proud parent of two boys. Joel, our first born, is dark haired, brown eyed and pretty ... Lucas is his younger brother. He is four and a half, blond, blue-eyed, charming, active, hedonistic, loud, opinionated - and autistic ...

Decoding Liesel
Liesel is our charming and beautiful daughter who has an autism spectrum disorder. Our journey through her disorder has been long and complicated and we share our story with you as the approaches we used might help you with your child.

Searching for the 'perfect' school for Tom
Three years of educating Tom at home and I am straining to feel clear about what I want to happen next. It's obvious that Tom needs to be back in a school setting among his peers. I want role models for Tom, the type that he can aspire to.

When your parenting skills are questioned
Parents get told that it is life's events that have created their child's behaviour and that if they do not mix well they are simply shy. I say to all parents if they feel something is not right with their child that they should persevere.

The human boy and the Martians
Jamie, a human baby boy, is born into a Martian family, in a Martian town, on the planet Mars. As he enters the world, he is overwhelmed by sounds, smells, feelings, tastes and sensations ...

Claiming Disability Living Allowance - a personal account
This is a personal account of claiming Disability Living Allowance (DLA) on behalf of my son who suffers from autism. The whole process was time consuming and frustrating.

Ignorance causes bullying
We have a little boy, Robbie, aged nine who was diagnosed with Asperger syndrome at the age of seven ...

Learning to cope with Tom's challenging behaviour
I love Tom. I want the world to be his. I wish constantly, I dream he can talk, play, never to run senselessly, blindly; be part of us and our world. Will it ever happen?

 

The views in this section are offered as the personal views of contributors. These accounts should not be read as generalisations of others' situations and do not necessarily reflect the views of The National Autistic Society.

If you would like your written story or a short film to be considered for inclusion in this section please complete one of our online forms.

Written stories can be published under a pseudonym and names and places can be altered if you would prefer privacy.

To read other personal stories, please follow the links below. There are also a number of published, full-length personal stories available from our online shop.


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