Our campaigns in England have achieved an incredible amount for people on the autism spectrum over the years. But there is still a long way to go until autistic people get the support, education and training they need to live their life as independently as possible.

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Too Much Information

Right now, we are campaigning to challenge the myths, misconceptions and stereotypes that make autistic people feel so isolated and make society feel so unwelcoming. 

The current focus of our Too Much Information public understanding campaign is employment for autistic people. We know that the vast majority of autistic people want to work, but they often struggle to find and keep a job. Just 16% of autistic adults are in full-time paid employment. And, in almost a decade, this appalling situation hasn’t improved. 

We are determined to change this, but we need your help. Read our report which sets out what we think the Government and employers need to do. Thank you to everyone who signed our recent petition to ask them to make those changes. You can also watch our new film, highlighting the difficulties autistic adults often experience with job interviews.

Learn more about TMI

What do we campaign about?

They key policy areas we lobby and campaign on are:

  • work and benefits
  • health and social care
  • education
 

We also support autistic people and families to campaign on local issues. Find out more about our work here and how you can get involved.

With your help, we've achieved some amazing things for autistic people and their families over the years. Find out more about our life-changing campaigns.

Tell Us About Your Care partnershipWe're working together to make sure health and social care services in England provide people with high-quality care

As part of the Care Quality Commission's Tell Us About Your Care partnership, we will help make sure that autistic people, their families, carers, and autism professionals, can share their views and experiences of health and social care services in England.  

Like the CQC, we think it’s crucial that, as the body responsible for regulating social care and health in England, they hear from the people most closely affected. Whether it’s bad experience which must be improved, or good practice that others could learn from, it's important to let them know. 

While individuals can still contact CQC directly to share any concerns they may have, this partnership is about encouraging more autistic people and their families to share their experiences and feedback to the CQC about services such as:

  • hospitals
  • hospice services
  • GP practices, including walk-in centres and out-of-hours services
  • dentists
  • community care and support services, such as district nurses and health visitors
  • clinics providing services such as family planning, slimming and some types of cosmetic surgery
  • community mental health services
  • ambulance services

As children can also use these services, the CQC also want to hear from autistic children and their families.

What should you do next?

What to feedback

CQC want to hear good and bad feedback which will be used to help improve care across England. However, this is not a way to make a complaint. CQC explains why this is on the ‘Tell us about your care’ guidance page.

Find out more